I would like to introduce myself and why I have started to write all this. It is not simple. English is not my native language and I am not very good in expressing myself either.
I came to Finland 9 years ago. And I am still in huge struggle with Finnish language. It is absolutely above my ability. I can speak little bit and I understand most of the things what my daughters talk but it is not really useful in the real life. Let's say among adults 😉. I have started to ski, to climb, I have continued ice skating, and swimming. I was really active My work was amazing, I had great colleagues. But all that ended with getting married and pregnant. During my first pregnancy I experienced few complications, when I ended up in the hospital. But only after another 2 years I got finally some kind of hint what is going on with me. The whole time I have been suffering from a pain in smaller joins of my hands, ankles, back pain, headaches and being tired all the time. But it was difficult for me to explain to doctors that it is not due to being a mom. It was something different. My fatigue was always accompanied by a rash, a pain, and broken and bleeding finger tips, many time turning white.
Only after that I got diagnose that I suffer for an autoimmune disease. probably Systemic lupus erythematosus (SLE), often just called lupus. It is not easy to diagnose, because symptoms differ from person to person. Lately doctors mentioned also diffuse scleroderma. Especially the bleeding finger tips can be quite painful. It makes also troubles with daily personal contact. People gave me their hands and I have to apologize that I have open wounds on my hands. I rather do not think what the people think about me. I try to cover it or to have a light gloves just for the reason that I do not hurt from touching anything sharper or I do not get infected. But people do not understand that. This disease is so hard in the sense that nobody sees it. Pain is not visible. The bleeding fingers are the smallest thing and people do not connect it. They typically give me advice to use a good cream. Which sounds funny.
All this dramatically changed my life. Everyday I have to eat pile of pills, suffer from the pain which never go away. I am trying to keep going, keep smiling because of my daughters. I am not sure how long I will be able to continue. I had recently my cardiac catheter ablation, which caused small shock to people around me. Well, that's one of the thing, you just do not see. I started to fall apart and I realize I have to do anything. Anything to keep my brain and my mental health up. So, I decided to start my own blog, where I would like to focus on the autoimmune disease awareness and my other things which keeps me going through it.
I came to Finland 9 years ago. And I am still in huge struggle with Finnish language. It is absolutely above my ability. I can speak little bit and I understand most of the things what my daughters talk but it is not really useful in the real life. Let's say among adults 😉. I have started to ski, to climb, I have continued ice skating, and swimming. I was really active My work was amazing, I had great colleagues. But all that ended with getting married and pregnant. During my first pregnancy I experienced few complications, when I ended up in the hospital. But only after another 2 years I got finally some kind of hint what is going on with me. The whole time I have been suffering from a pain in smaller joins of my hands, ankles, back pain, headaches and being tired all the time. But it was difficult for me to explain to doctors that it is not due to being a mom. It was something different. My fatigue was always accompanied by a rash, a pain, and broken and bleeding finger tips, many time turning white.
Only after that I got diagnose that I suffer for an autoimmune disease. probably Systemic lupus erythematosus (SLE), often just called lupus. It is not easy to diagnose, because symptoms differ from person to person. Lately doctors mentioned also diffuse scleroderma. Especially the bleeding finger tips can be quite painful. It makes also troubles with daily personal contact. People gave me their hands and I have to apologize that I have open wounds on my hands. I rather do not think what the people think about me. I try to cover it or to have a light gloves just for the reason that I do not hurt from touching anything sharper or I do not get infected. But people do not understand that. This disease is so hard in the sense that nobody sees it. Pain is not visible. The bleeding fingers are the smallest thing and people do not connect it. They typically give me advice to use a good cream. Which sounds funny.
All this dramatically changed my life. Everyday I have to eat pile of pills, suffer from the pain which never go away. I am trying to keep going, keep smiling because of my daughters. I am not sure how long I will be able to continue. I had recently my cardiac catheter ablation, which caused small shock to people around me. Well, that's one of the thing, you just do not see. I started to fall apart and I realize I have to do anything. Anything to keep my brain and my mental health up. So, I decided to start my own blog, where I would like to focus on the autoimmune disease awareness and my other things which keeps me going through it.
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